Welcome to CAH Kids!

Congenital Adrenal Hyperplasia

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This is your comprehensive guide to all things CAH! 

Clinical and Research Efforts

  • Multidisciplinary care of CAH
  • Medical and Surgical CAH Center of Excellence at CHLA
  • Transition Care
  • Ongoing clinical research studies

CAH Support

  • Southern California CAH Support groups (Join an event!)
  • Education materials
  • Advocacy
  • Tips from our CAH Psychologist (The Doctor is In) 

COVID-19: 

Tips as you cope with the changes due to COVID-19:

*Refill your medications. Double check your stress-dose medications:
– Work your way up to having 4-6 Actovial kits at home
– Check the Actovial boxes before leaving the pharmacy – it should say Actovial (not just Solucortef powder).
– Make sure you have your oral medications for stress dosing.

*Some of you have heard of a shortage in hydrocortisone manufactured by Greenstone (has “Cortef” stamped on the tablets) due to a distributor issue. You can still obtain generic hydrocortisone from manufacturers Impax and Vensun at pharmacies. Brand name Cortef is also available for those who are authorized to obtain brand name.

*Keep up general hygiene!  Tips from CHLA: 

  • Regularly wash hands with warm water and soap for at least 20 seconds. If soap is not available, use alcohol-based hand sanitizer with at least 60% alcohol.
  • Avoid touching your eyes, nose and mouth as much as possible.
  • Cover your cough or sneeze with a tissue that can be thrown away immediately.
  • Clean and disinfect surfaces that are frequently touched at home, work and school.
  • Stay home if you are sick.

*CHLA now has testing for COVID-19. Call your pediatrician if your child has symptoms of COVID-19 or has been directly exposed to someone with the illness.
For more information on COVID-19:
https://www.chla.org/blog/health-and-safety-tips/what-you-should-know-about-the-novel-coronavirus-disease-covid-19

Upcoming events

The 20th Anniversary CAREing Hearts Gala for CAH will be on June 27th at Sony Picture Studios in Culver City. caresfoundation.org/

Dr. Roger De Filippo will receive the Physician Pioneer Award. He is Co-Director of the CHLA Surgical Center of Excellence for CAH and has been a true advocate and champion for female patients with CAH.

Congratulations, Dr. De Filippo!

Fun Facts

  • The human brain weighs 3 pounds!
  • The brain changes shape when you learn!
  • The brain generates enough electricity to power a light bulb!
  • Your mouth produces 1 L of saliva per day!
  • Human teeth are just as strong as shark teeth!
  • Like fingerprints, every person has a unique tongue print!
  • If uncoiled, the DNA in all the cells in your body would stretch 10 billion miles long.